Hydrocephalus

Wow it's been a while since I've posted! Last week we were faced with a CAT scan for Liam - only 9 months old! - to rule out hydrocephalus and brain tumors. Iti inchipui? So, the first part of the week was awful - I went through a million scenarios in my mind. I worried and worried about the CAT scan. All the information I had said that Liam would have to be aenesthetized. He had just given blood and that was hard enough. I didn't want to watch the nurse insert an IV and then have to watch his little eyes slowly close as he went under.

Well, perfect baby that he is, the nurse tried to do the scan without aenesthesia, and he stayed perfectly still! Again, iti inchipui? (Can you imagine? - romanian) I stood outside the room and prayed like mad, and he layed perfectly still while they did the scan. No need to medicate that kid! And, hours later, I called the doctor for the results, and they confirmed that Liam has a big, healthy head.

While all this was going on, I learned more about hydrocephalus. As it turns out, congenital hydrocephalus is usually because of a problem that occurs in utero. They try to catch it by the time the baby is 4-9 months, and with the use of a shunt and when caught early, most babies grow up to live relatively normal lives with very little long term brain damage. It is very treatable and manageable.

I also thought a lot about how I would explain it to Sofia if Liam did indeed need treatment. I finally decided, and this was a difficult topic to think about, that I would teach her that all things are created by God - she is, Liam is, the trees and butterflies, popsickles, and Larry the cucumber... But even hydrocephalus is created by God. Contrary to what most people would tell you, it isn't a disease or a birth defect, because God didn't make a mistake. And, in God's eyes, hydrocephalus is a blessing. We may never understand how, but God's ways are not our ways and his thoughts are not our thoughts. But if we truly believe that He created all things out of a void, than we must believe that even illnesses, tumors, and what we would call birth defects are all created by an all-loving, sovereign God who doesn't make mistakes. And the things that we see as ailments or 'thorns' in our side as Paul said, very well may be designed by God to bless us. The hard thing about that is that when you're going through it, I don't know how you'd look at the struggles, losses, and pain as blessing. But I have to believe (and maybe it's easier for me because I haven't been there) that even things that may seem like curses are actually blessings.

By the time we had the scan, I was at peace with the situation, and had decided that if God had designed Liam with hydrocephalus, we would cope with and use his weakness to bind the family together and grow together. I praise God that he's healthy though, and I can only hope that a hydrocephalus scare is the biggest issue we have to deal with for a long time.